Hi,
I am writing to you from Germany. I am Irish but currently living near Stuttgart. Egg donation treatment is illegal in Germany so it is difficult to find info or other people to talk to. I came across this forum and liked the posts very much . I find this forum very helpful.
My story is that I was diagnosed with ovarian cancer aged 19. My surgeon removed both my ovaries but left my uterus. He said he thought I might need it some day! Any doctors I have consulted since then have been shocked that he took this risk but here I am 17 years later starting the process of trying to conceive with egg donation. I am trying to remain hopeful by believing that I held on to my uterus against the odds for a good reason!!
I went for my first consultation last Saturday and am having lots of tests at the moment. I am attending Instiut Marques in Barcelona. My history makes my case a very straight-forward one however my ultrasound showed that I have fluid in my uterus which could be a problem. I have been told about this fluid before. It builds up while I am taking my hormones that give me a period and then is gone after the period. The doc said it could be due to damage to the endometrium caused by the chemo I had or the fact that my surgery put me into menopause. I have been taking HRT but even that wouldn't give me full protection. As a result of the fluid he wants me to do a mock cycle.
Does anyone have any experience with fluid in the uterus and / or damage caused my chemo? I would appreciate any info or insight! I am particularly interested in anything I can do in terms of nutrition to improve the situation.
Also I am wondering what are your feelings about refunding programs?? In my clinic the refunding program is 30,000 euros (so about 41,000 dollars). This gives me three cycles. However my clinic considers a successful pregnancy one that reaches 22 weeks. So I could lose the baby after 22 weeks and they would still consider my treatment successful. If this happens in cycle 1 we could lose all our money. This seems crazy to me! My husband says that I was happy to spend close to this on our wedding! He is right of course but we are just starting out on our married life together. We want to upgrade from an apartment to a house and we are still trying to get our academic careers off the ground, so the sums of money involved in the treatment terrifies me. This fear is the main feeling I came away from my first consultation with. I am 37 and I don't want to wait any longer before trying to start a family as I am afraid that the condition of my uterus will deteriorate further. I would appreciate any advice!
Sorry about the long post . Thanks in advance for your advice!
Emma